Diagnosis · Autism guide

Autism diagnosis and self-identification: who gets to belong?

By Helen Edgar and David Gray-Hammond · From the Re-Storying Autism workbook, Module 2

Diagnostic systems are not neutral. They reflect the biases, values, and cultural assumptions of the societies in which they are created. Autism diagnosis is shaped by:

  • Racial bias
  • Gender bias
  • Class bias
  • Linguistic expectations
  • Limitations of observation-based assessment
  • Stereotypes rooted in early work dominated by white male samples and the idea that autism is a childhood disorder
  • The pathologising agenda of psychiatry

Diagnosis can be helpful for accessing support, language, and community. But diagnosis is not a prerequisite for identity, nor is it a moral endorsement from medical professionals.

Keep going in the course

This is a short extract. The full lesson in Module 2: Identity, Language and Disability Models includes the video teaching, the rest of the workbook text, reflection questions for parents, carers and Autistic people, and progress tracking.

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